file Living with Endo

14 years 2 months ago #225713 by Bea
Replied by Bea on topic Re: Living with Endo

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ME: 40 - stage 4 endo, left tube removed
DH: 42

4x laparoscopies
5x hysteroscopies
4x IUI - BFN
12x IVF/ICSI/PICSI - BFN
Planning our next step: donor eggs, adoption or living happily ever after with an only child

May 2016: Lucky nr 13 IVF (own eggs) - BFP! First beta 253, second beta 1100.
First and second ultrasound: one perfect little heartbeat.
10 week scan: identical twins in one sac!!

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14 years 2 months ago #225677 by Zarah
Replied by Zarah on topic Re: Living with Endo

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Me: 41 (Endometriosis stage 4 & Fibroids)
DH: 36

TTC since Nov 2011

Laps: Aug 2011, July 2012, Jan 2013 & Feb 2017
Myomectomy: May 2018
Lots of timed cycles with clomid & progesterone = BFN
IUI 1: May 2013 = BFN
IUI 2: June 2013 = BFN
IVF 1: Aug 2013 (Clomid, Menopur 4ER & 3ET) = BFN
IVF 2: Feb 2014 (Clomid, Menopur 3ER & Nothing to transfer) = Cancelled Cycle
IVF 3: May 2014 (GonalF, Menopur 1ER & 1 very slow divider ET) = BFN
IVF 4: September 2014 = BFN
IVF 5: October 2015 = BFN

THE END..not yet

IVF 6: October 2018 = BFP (2 miracles on board) Our boys were born sleeping at 21 weeks.

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14 years 2 months ago #225676 by Bea
Replied by Bea on topic Re: Living with Endo
Thanks for that Zarah.


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ME: 40 - stage 4 endo, left tube removed
DH: 42

4x laparoscopies
5x hysteroscopies
4x IUI - BFN
12x IVF/ICSI/PICSI - BFN
Planning our next step: donor eggs, adoption or living happily ever after with an only child

May 2016: Lucky nr 13 IVF (own eggs) - BFP! First beta 253, second beta 1100.
First and second ultrasound: one perfect little heartbeat.
10 week scan: identical twins in one sac!!

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14 years 2 months ago #225664 by Zarah
Replied by Zarah on topic Re: Living with Endo
Hey Bea

I contacted the Tygerberg branch and they dont do Fertility there anymore. Only at Vincent Palotti. I am with Dr Slabbert who use 2 be at Vincent but started his own practice in Panorama. His rates are the same.


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Me: 41 (Endometriosis stage 4 & Fibroids)
DH: 36

TTC since Nov 2011

Laps: Aug 2011, July 2012, Jan 2013 & Feb 2017
Myomectomy: May 2018
Lots of timed cycles with clomid & progesterone = BFN
IUI 1: May 2013 = BFN
IUI 2: June 2013 = BFN
IVF 1: Aug 2013 (Clomid, Menopur 4ER & 3ET) = BFN
IVF 2: Feb 2014 (Clomid, Menopur 3ER & Nothing to transfer) = Cancelled Cycle
IVF 3: May 2014 (GonalF, Menopur 1ER & 1 very slow divider ET) = BFN
IVF 4: September 2014 = BFN
IVF 5: October 2015 = BFN

THE END..not yet

IVF 6: October 2018 = BFP (2 miracles on board) Our boys were born sleeping at 21 weeks.

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14 years 2 months ago #225656 by Bea
Replied by Bea on topic Re: Living with Endo
Hi Jupiter

I had surgery for my severe/stage 4 endo at Aevitas fertility specialists at Vincent Pallotti last month. They also have a branch at Tygerberg Hospital, which is a state hospital - so maybe she should give the hospital there a call and see what they offer in terms of endo surgery?

ME: 40 - stage 4 endo, left tube removed
DH: 42

4x laparoscopies
5x hysteroscopies
4x IUI - BFN
12x IVF/ICSI/PICSI - BFN
Planning our next step: donor eggs, adoption or living happily ever after with an only child

May 2016: Lucky nr 13 IVF (own eggs) - BFP! First beta 253, second beta 1100.
First and second ultrasound: one perfect little heartbeat.
10 week scan: identical twins in one sac!!

File Attachment:
File Attachment:

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14 years 2 months ago #225636 by Zarah
Replied by Zarah on topic Re: Living with Endo
Hi Jupiter

I have so much understanding and compassion for your SIL.
I also suffer from Endo and will be going for major surgery next month. I really want a baby, but in addition to that, living with Endo is starting to drastically affect my life.

I have been missing work when I have my period. The only thing that helps for the pain is Nurofen for Period pain. Tell her to try it.

:heart:

Me: 41 (Endometriosis stage 4 & Fibroids)
DH: 36

TTC since Nov 2011

Laps: Aug 2011, July 2012, Jan 2013 & Feb 2017
Myomectomy: May 2018
Lots of timed cycles with clomid & progesterone = BFN
IUI 1: May 2013 = BFN
IUI 2: June 2013 = BFN
IVF 1: Aug 2013 (Clomid, Menopur 4ER & 3ET) = BFN
IVF 2: Feb 2014 (Clomid, Menopur 3ER & Nothing to transfer) = Cancelled Cycle
IVF 3: May 2014 (GonalF, Menopur 1ER & 1 very slow divider ET) = BFN
IVF 4: September 2014 = BFN
IVF 5: October 2015 = BFN

THE END..not yet

IVF 6: October 2018 = BFP (2 miracles on board) Our boys were born sleeping at 21 weeks.

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14 years 2 months ago #225632 by jupiter
Living with Endo was created by jupiter
Hi ladies

My sister-in-law is 25. She was diagnosed with severe endometriosis last year while she was living overseas. She had surgery there, then moved back home. She was told she would need more surgery further down the line. She has been home for a few months. The endo is making her life difficult. She's in pain all the time, she can't sleep at night and she's depressed. She doesn't have medical aid so she can't afford to see a gynae or a specialist. Her family can't help financially either. She is not currently TTC (not for a long time still) but would like to have children one day. Right now she needs a plan to make her life bearable again. Does anyone have any advice? She lives in Cape Town.

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