file Endometriosis

10 years 9 months ago #269487 by Chanti
Replied by Chanti on topic Endometriosis
@kayla - I honestly wish i had operated a year ago when my cyst was first found, however my Dr at the time was of the opinion it was going away. I saw a new gynae this month, she booked me in for a lap to remove the then 5cm cyst and she then discovered stage 4 endo. During our visits she didn't expect endo at all, considering my age,etc. If she hadn't done the lap she wouldnt have found the endo, it is so very difficult for them to diagnose on a scan. If your cyst hasn't gone when you return then please allow her to do the surgery and then she can also have a look around and see if anything else is out of the ordinary. I am sadly now sitting with a blocked tube on a healthy ovary and an open tube on a damaged ovary with little hope of conceiving naturally. Im not trying to scare you but please don't mess around with cysts and suspected endo, catch it as soon as possible. I had symptoms similar to Jooste, including large clots in the last few days of my cycle along with extreme pain. Wishing you the best of luck hun!

Me: 24
DH:25

April 2015: Trying for #1
November 2015: Diagnosed with Stage 4 Endometriosis. Laparascopy to remove chocolate cyst and most of endo. Tubes
blocked and referred for IVF... Visanne prescribed.
Oct 2016 - IVF#1 - BFN
March 2017 - FET - BFN
April 2017 - Surprise BFP!
June 17 -Late M/C 13w4
Aug 17 - Chemical pregnancy M/C 5 weeks
Nov 17- BFP on my birthday! 13DPO BETA 201

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10 years 9 months ago #269466 by kayla
Replied by kayla on topic Endometriosis
So I went to the doctor on Monday.

She did not even mentioned endometriosis. I have a large cyst on my right ovary. If it is not gone by the 8th she will have to remove it for it has already ruptured partially. She actually wanted to operate immediately, but I asked for conservative treatment first.

She says the painful intercourse is just due to my body that changed after birth and I need to see a physio for that. I am not convinced because I had the problem before birth. It has been going on for about 2 years, I doubt I will would have had a bleeding cyst for over 2 years.

Maybe this is all just in my head.

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10 years 10 months ago #269281 by kayla
Replied by kayla on topic Endometriosis
Thank you for the reply Jooste

I am seeing the doctor on monday. My symptoms sounds similar. Will let you guys know what she says

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10 years 10 months ago - 10 years 10 months ago #269250 by joo~ste
Replied by joo~ste on topic Endometriosis
Hi
I had very specific symptoms:
- diaree and bloated during AF's arrival each month
- pain during intercourse (not always)
- brown spotting for a couple of days before AF's arrival
- extreme pain the first two days of AF (only Brufen in high doses made me the get through the day)

Then the fertility specialist did an ultrasound during one of my menstrual cycles (when AF was visiting) and he showed me the inflammation all around my uterus. I had a LAP in Oct 2010 and Stage 1 Endo was diagnosed and removed. The symptoms dissapeared. It slowly re-appeared after about 6 months. I had another LAP in Jan 2012 and was then diagnosed with Stage 2 Endo. It was worse than before and was mainly due to all the fertility treatments I had in between the two LAP's. The hormones stimulates Endo growth.

I then fell pg via IVF and BF exclusively for 10 months. Fell pg naturally when our first born was 9 months old and BF him until 13 months. Fell pg naturally when he was 13 months old, but unfortunately miscarried last week. The specialist explained that the back-to-back pg and the BF helped in keeping the Endo from growing and hence my chances for natural conception is higher. I also have not experienced any endo-type like symptoms ever again since being pg.

Me:40/DH:39
TTC#1 =3yr2m
TTC#2 =3m
TTC#3 =2yr

Journey started: May 2009 (Gr II Endo)
Total cycles TTC: 64
Clomid/Femara/Inject cycles: 20
IUI: 2
IVF: 1
Lap/Hyst: 4
Miomect: 1
Polipect: 1
D&E: 2
Missed MC: 2
Chem Pg: 4

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10 years 10 months ago #269114 by kayla
Replied by kayla on topic Endometriosis
Hi Nikita I sent you a personal message. Hope you got it.

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10 years 10 months ago #269112 by Nikita87
Replied by Nikita87 on topic Endometriosis
Hi Kayla,

you can click on my profile and I think on the right hand side it says private messages.

Me: 31
DH: 35
Married since: 2011

DH - SA done - all is well
Me - Stage 1 Endo

TTC #1
BFP - 6 September'15
Miscarriage @ 7w1d - 4 October'15

BFP - 17 September'16
Baby Boy born via C-Section - May'17

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10 years 10 months ago #269104 by kayla
Replied by kayla on topic Endometriosis
Thanks Nikita,

Can I private msg you? And how do I do that? I googled my symptoms and I think I might have it. But I made an appointment with my gynea anyway for the end of the month. If it is not that, there is definitely something going on.

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