1 out of 1000

Been thinking of you all day, really hope you got good news!!

Thank you all for the support!

The waiting is very hard, it's only Tuesday today, the days go by so slowly.

Tansha so sorry to hear about the bad news, Realy hping and praying that you get good news on thursday!

Just to share a very good friend of mine was also told at her 20 week scan that baby has a cleft lip and posibly another defect, they did the amnio and was very high risk for downs. Baby was born PERFECT! no down and not even a cleft lip!!

Please keep us updated, crossing all fingers and toes for good news!!

Hi

Just thought I would share and let you kow that having a cleft palate baby isnt necessarily as bad as other potential defects that are out there - my sister is a cleft palate baby and although she didnt have a hair lip - her palate was "missing". Its tough going - she used to choke on her milk and my mom had to always be watching her, but at 5 months she went for an operation that closed her palate back up and she is now 29 years old and totally normal!

The specialist did mention to my mom that usually cleft palate babies' ears can be displaced [ie not aligned to each other etc]- so just ask your gynae to check okay!!!

Dont stress, good luck with the results and just try to get as many answers as you can.

Hi girl. Thinking of you in your wait for the results. Lotsa hugs!! x xx

Sending you lots of love and light!
xxx

Hi Tanasha,

I am sorry that you have to go through this. Had a scare as well when I was pregnant with K so I know the level of stress you must be experiencing is phenomenal.

K's results came back as high for spin bifida. The gynae checked on his machine and his machine is a bit old and he said it looked like K had Open spina Bifida which meant her spine would be out in the open when she is born. He sat down with us and went through a pre-counselling and told us that if K does have it there is a high chance that she would be paralysed and one of the options was termination if everything gets confirmed by the fetal specialist.

Anyways, we had to wait 1 whole week before we got an appointment and it was the worst week of my whole life. Eventually we had a scan again at the fetal assessment clinic and all was well with my baby girl. she was just perfect. I hope you have the same luck as I had and everything is fine.

Just to let you know, even when I was faced with this predicament, my decision was to keep the baby.

We named her Kamilah which means the perfect One soon after that scan that gave us the good news