file 1 out of 1000

15 years 6 months ago #168750 by lollipop
Replied by lollipop on topic Re: 1 out of 1000
Tanasha, how stressfull this must be. I hope that it will be good news on Thursday...good luck for the wait.

Please Log in or Create an account to join the conversation.

15 years 6 months ago #168748 by TaNasha
Replied by TaNasha on topic Re: 1 out of 1000
Thanks Vix

Maryke we will have results on Thursday, so still quite a long wait.

Please Log in or Create an account to join the conversation.

15 years 6 months ago #168743 by Vixie Pixie
Replied by Vixie Pixie on topic Re: 1 out of 1000
Tanasha- I cannot speak from experience, I only wanted to say I'm thinking of you, I have no doubt this is really tough on you and your partner. I hope the results show just a cleft lip with no other chromosonal abnormalities mainly because it leaves you with very difficult descisions for the rest of your life.

I'm sending you a big virtual hug and tons of virtual kisses.

Xxxxxxxxxxxxxxxx

Baby Bear Creations
vickie@babybear.co.za www.babybear.co.za

File Attachment:


File Attachment:

Please Log in or Create an account to join the conversation.

15 years 6 months ago #168742 by Maryke D
Replied by Maryke D on topic Re: 1 out of 1000
Hi Tanasha

Thanks other then sleepless nights they fine...

Hand it to God and take it of your shoulders God won't give us what we can't handle...

When should you get the results?

File Attachment:
File Attachment:

File Attachment:
File Attachment:
File Attachment:





Due date 01Jan 2010

First gyne visit 21 May 2010
Second gyne visit 03 June 2010 @ 17.00
Third gyne visit 17 June 2010 @ 17:30
Fourth gyne visit 15 July 2010 @ 17:15
Fith gyne visit 11 August 2010 @ 11:30
Six gyne visit 08 September 2010@ 9.00
Seventh gyne visit 07 October 2010 @ 17:00
8th Gyne visit 12 Nov @ 9:30
9th Gyne visit 26 Nov 9:00
Twins born 29 Nov 16:50 via e c-section

Starting...

Please Log in or Create an account to join the conversation.

15 years 6 months ago #168738 by TaNasha
Replied by TaNasha on topic Re: 1 out of 1000
Thanks Maryke. I am happy your baby boys are fine and healthy!

I am also happy it could only be a cleft lip. It could be so much worsse.

But now waiting for the amnio results I keep thinking what if... I really do hope nothing else is wrong.

Please Log in or Create an account to join the conversation.

15 years 6 months ago #168735 by Maryke D
Replied by Maryke D on topic Re: 1 out of 1000
Hi Tanasha

I am very sorry to hear and I hope in time you will come to terms with it and see it as a blessing then a disability


I am also a mommy 1 out of a 1000, my twin boys where born with clubfeet on the 29 November 2010 we only found out at birth and all I can say that medicine has inproofed so much that we are actually shocked at what they can do for little ones

My boys had there first op on saturday the 12 March and yes it scary but you know they can fix it and that is what I am greatful for and I believe they will be able to fix your lo's cleftlip as well, my night nanny has a cleft lip too but I promise you you can only see the scar her lip looks so normal

My boys are going for there next op on wednesday the 23 March for there second op to remove the stiches and manipulate the pins in there feet and to recast there legs then on the 20 April we go back again for another manipulation then on the 20th may the cast come of and hopefully all will be well, then when they turn a year the doc evaluates them again when they walk to see if another op will be needed

I thank God everyday that I have a disability that can be rectified with operations my two boys are healthy eating well yes everyday is a challenge but I take it with a smile cause I waited for them for so long

Strongs girl and with God on our side we have nothing to worry about



:laugh:

File Attachment:
File Attachment:

File Attachment:
File Attachment:
File Attachment:





Due date 01Jan 2010

First gyne visit 21 May 2010
Second gyne visit 03 June 2010 @ 17.00
Third gyne visit 17 June 2010 @ 17:30
Fourth gyne visit 15 July 2010 @ 17:15
Fith gyne visit 11 August 2010 @ 11:30
Six gyne visit 08 September 2010@ 9.00
Seventh gyne visit 07 October 2010 @ 17:00
8th Gyne visit 12 Nov @ 9:30
9th Gyne visit 26 Nov 9:00
Twins born 29 Nov 16:50 via e c-section

Starting...

Please Log in or Create an account to join the conversation.

15 years 6 months ago #168718 by TaNasha
1 out of 1000 was created by TaNasha
My baby is that baby

My baby is that one baby
that one out of so many babies
that one baby that no one really thinks about
that one baby that you always think will never be you
that one baby that you always think happens to other people

Well my baby is that baby
that 1 out of 1000 babies
that one baby that will be born with a birth defect


On Tuesday I had my 20 week scan. I didn't think too much of it, I just assumed everything would be ok. Because these things always happen to somebody else, right?
I could just tell at the sonographers face that somethingw as wrong as she checked the face. She didnt say anything and said she could not get a clear view because baby's hands were infront of her face. She said she will come back to that later. She then took extemely long checking everything else, especially the heart and hands and feet. She told me not to worry and she is just checking everything carefully.
Eventually she went back to the face, and took a long time looking at this again.
When she was finished she said she was very sorry and that she had some bad news.
She said it looks like my baby has a cleft lip. I then said but that's ok right? It can be fixed? It's not that big deal? She then told me she would call the gyneacologist and have hime answer all my questions.

So i went to the gynea's office and he said, what a way to start the day with such bad news hey? I still did not understand it completely, it's just a cleft lip.
He then explained that it could just be a cleft lip and possibly palate, but sometimes it could be part of a chromosone abnormality. Right there it hit me and I started crying. He then made an appointment for me to see a specialist for a level 2 scan and possibly an amnio. He told me I only have until 24 weeks to have an elective abortion. Now I knew this was more than just a cleft lip.

So yesterday we went for the level 2 scan. They checked everything, measured everything. Everything looks fine and baby is measuring perfectly according to plan. They did confirm that she will have a cleft lip on the left side. They tried to check for the palate aswell, but not confirm.

They then asked us whether we want an amnio. We immediately said yes.The amnio was not too bad, I did not feel anything. Afterwards I was very emotional and I still am.

We will get the results next week Thursday and then take it from there.

Now the waiting starts. The waiting is the hardest part.

I am still stunned that that 1 out of 1000 babies is my baby.

Please Log in or Create an account to join the conversation.

Powered by Kunena Forum
Don't have an account yet? Register Now!

Sign in to your account