Trisomy babies

After months of trying to source feeding tubes for Lior and being told that the size tube we use has been discontinued, I contacted the manufacturer overseas and they were completely dumbfounded to the fact that I was told they were discontinued. so the MD there threw a few tantrums with the supplier here in Jhb and they pulled their fingers out their backsides and found tubes for me. Its amazing what lengths people will go to when a "higher power" steps in

What a relief, I was really worried that I would have to use the three daily tubes for Lior

Hi ladies, sorry I did not respond on Friday, was just really bushed and left the office early to go home and get some sleep, not that I got any.

Thank you all for the kind words and encouragement, you have no idea how much it helps on a downer day

She did Girly, you must click on her profile to see Lior.

Hey there Butterflies

I remember when you first found out about your baby's condition.
I am soooooo glad to see he is doing so well, your true little miracle.
It's wonderful to see all the things he is doing just like every other normal baby out there and so impressed with the feeding!

I hope that you will one day find a solution to the feeding without straining his poor heart.

You are an inspiration to all of us. I've bookmarked your blog and will continue to follow your story and I hope you have many many more memories to build with your precious family.

Can you post a pic of your little angel please?

Welcome butterflies and im busy reading you blog. you have a little miracle and well done to you for doing it so well.

Thanks Tienka. He generally is a very happy baby, only really cries when he battles with constipation or something is really wrong, otherwise we dont really have any hassles with him

Lior is GORGEOUS!!!!!!!Despite his challenges he looks like a happy little chappy!!