August-September 2010 Moms

Hi ladies

Robyn must be nice getting some solid hours of sleep again!
So cute re the cereal! Just shows shes ready. K is the same with her food - but even more with Selero icies she doesnt give me a chance to eat it she wants it all.
Wow she's a strong girl!

Hi everyone else?

Kaylee is off the ventilator!!! So happy! I put the pics on facebook of her without the ventilator, she looks so peaceful.
But when she wakes up she gets very frustrated as her arms are tied down and she cant really move them, and the pipe in her nose irritates her so she tries so hard to pull it out but cant
She is still very sedated so she cries but its such a wimper sound that you can hardly hear it. But then she looks at me and my heart breaks cos I cant help her My poor baby girl.
I've realised in this week just how much I love her! She has been through so much and I would do anything in the world for her not to be in such pain and discomfort

So yesterday was a sad day but really gave me some perspective. There is a newborn baby in the ICU who also just had a heart op. The mommy is from Namibia and is single - she has NO family or support with her in Cape Town.
They did chromosome testing on the baby once it had been born, and the surgeon received the results yesterday which confirmed baby has Trisomy 18!!! I had to go step into another room as the tears just ran down my face at the thought of a mom hearing that kind of news.
Now the surgeon isnt qualified to tell her about it or guide her about future care. All she could do was tell her it was a pretty bad prognosis and life expectancy isn't good and that she should go onto google to read up about it.
I cant imagine finding out that kind of news and being limited to getting the details via google without any idea of future care / how she will do.
The baby is amazingly strong and came through a heart op and looks like she'll be moving to general ward soon which is pretty amazing for a baby that's considered not viable with life.
Just shows how truely miraculous life is.
I wish I could say something to this mom to make her feel better. But truth is I cant.
So I'm waiting for Butterflies to get in touch with me so that I can put them in contact for some encouragement and guidance.
My heart just breaks. And it makes me realise just how fortunate we are to have healthy children, even if they aren't 100% and need surgery to assist them. Certainly gives some perspective!

Sorry for the once again selfish post. You guys are my outlet sometimes so hope its okay.

I'm going to the hospital at 12 again, and will stay there until 7:30 tonight again. It's a long day but at least then I am with her.
I was told to bring some cereal, and that they may see if she can breastfeed today! Totally excited about that prospect! But she's going to be in a great deal of pain on her side as the wound is still bleeding, so not really sure how I'm going to manage with that. If only I could take the pain away

hi ladies
we have now stopped the 23h00 bottle and give Dakota her last bottle at 19h00 (with some cereal if she wants) and she has slept thru til 04h00 and even 06h00 this morning, altho she does wake up for a few mins during the night and gives a little moan/cry but then goes back to sleep

She absolutely loves her cereal so much that she opens her mouth as wide as possible as soon as she sees the bowl & spoon - it's so cute!

She is determined to crawl - she now gets on her hands and knees and then pushes up onto her toes and then falls over!

her new schedule
06h00 - wakey, wakey & play time with daddy
07h00 - 150ml milk
09h30 - cereal (80ml milk)
11h00 - 150ml milk
13h30 - veggies (40g sweet potato/butternut)
15h00 - 150ml milk
17h30 - veggies
18h30 - bath
19h00 - 150ml milk (and 50ml cereal if she wants)
20h30 - sleepy time

she usually sleeps for 45-60mins after each bottle

All the best Girly - you & baba are in our thoughts & prayers

So glad to hear the op went well Girly. I love what Charne said, can't wait to hear you tell us her smile is back. Praise God for medical aid and good doctors. And God will give you a private room

Girly, thanks for posting. We are all thinking of you. Hope that Kaylee will be off the ventilator soon and can't wait for your post when you tell us that her smile is back

Lerato - youre welcome, hope it helps

Girly - so glad to se eyou and little one doing okay - Sorry about the recliners...

Girly, such good new that LO is doing well. It must be heartbreaking for you right now...

What is the next step, what do the dr's do now?

Those recliners are so damn uncomfortable to try sleep in... I hope you get a proper bed...

Take it easy hun!

Hi girls

Quickly popping in.

Thanks for all your messages and support. It means the world to me. Nikki thanks for calling this morning. You brought tears to my eyes.

Well Kaylee is doing okay now. She had the heart operation yesterday and is now in ICU in very good hands. I am heading there now to visit for a while. It's really difficult as she is on the ventilator and sedated so she just lies there, but I know that its the best thing for her now and only a few days away I'll be able to hold her again and see her smile

Sorry for being MIA and sorry I cant catch up on the posts but life is a bit hectic now.

Just wanted to say thanks to all and I'll keep you updated as I can. She will prob move to general ward on Saturday or Sunday depending how she is doing. And then I will be sleeping there with her so I wont have internet access except my cellphone but I have to keep my bill down. But I will send SMS's and ask to update on my behalf.
I am really hoping they'll get us a private room as with me rooming in sleeping on a sleeper recliner is not nice and I need to get my rest as well.

Anyway, off to see my little girly!!!