file Trisomy babies

15 years 7 months ago #159842 by butterflies
Replied by butterflies on topic Re: Trisomy babies
Jip - its the tube directly into the tummy. We will discuss it with the paed and get his take on it, but Lior will also have to see a cardiologist and that for their takes on it, to see whether he would make it through an anaesthetic, so right now its just investigating.

Ok I dont envy you, after a long day at work and then still having to drive all that way !!! Not nice

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15 years 7 months ago #159824 by shonna
Replied by shonna on topic Re: Trisomy babies
all good this side... besides for the blue and black monday!

ye its a quick trip! sucks but what can one do when you running a family business!

Mic-key peg? is it that tube that goes directly to the stomach?

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15 years 7 months ago #159817 by butterflies
Replied by butterflies on topic Re: Trisomy babies
Hi Shonna

We are doing well thanks and you?

We had a quiet and relaxing weekend. Lior is doing ok, not too fantastic at the moment, but not bad either. He is a bit snotty at the moment and had a small seizure this morning. We are off to the doc tomorrow for a check up and to discuss the mic-key peg for him. Otherwise all good.

I believe guys are only coming on Saturday afternoon and going back Sunday?

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15 years 7 months ago #159812 by butterflies
Replied by butterflies on topic Re: Trisomy babies
Hi Girly

Thanks for letting the mommy know that she is more than welcome to contact me. It is scary researching on the net, as you generally only come across the negative, unless you specifically search for children with the syndrome that are still living - only then will you come across our little earthly angels.

Any news on how the little one is doing after the op.

How is your little one?

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15 years 7 months ago #159736 by shonna
Replied by shonna on topic Re: Trisomy babies
Good morning,

How are you?

Did you have a good weekend?

How is Lior?

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15 years 7 months ago #159511 by Joybaby
Replied by Joybaby on topic Re: Trisomy babies
Hi Butterflies.

Helena has said she will call you when she gets back to windhoek hopefully next week, as she doesnt have airtime. But I'm going to give her some tomorrow so hopefully she can do so sooner.

Thanks again for your help.

First angel resting 25/06/2009 stayed with us a short 7 weeks but we still miss you.

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15 years 7 months ago #159144 by butterflies
Replied by butterflies on topic Re: Trisomy babies
Hey Nothing beats being around "happy" people !! :) :) :) - hey look at this way, at least you get away from the norm for a little while.

Shame old gigi - I suppose she isnt young anymore. I am glad you guys are there for her.

The last time I spoke to Jacque she had no idea. I think her next appointment is only next month so she may only find out then, but she is doing very well and very excited.

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